How Life Feels To Butterfly Kids by Staudinger Franke
Buttefly Kids suffer on a disease called Epidermolysis Bullosa (short: EB). Even with the slightest friction this disease can cause painful blisters on the entire body: both externally (skin, eyes, etc.) and internally (such as inside the mouth or in the gastro-intestinal tract). Those with EB are living with permanent pain and undergo daily difficult wound treatment. DEBRA Austria offers help, counselling and information to those, whose quality of life is significantly limited by this rare disease that has serious consequences and is often very painful.